Well the Title says it all.
In this blog im going to write about my last twelve days in one blog
Simple I hope
Well on Tuesday 10th September I noticed I had an ulcer, I dont get them often but of course taking a bite of food it hurt and I thought oh well Salt water and bongella and all will be well in a day or two.
Oh how wrong that thought turned out to be.
Come wednesday night I couldnt eat or drink anything but forced myself in pain to eat what I could and drink my body weight in water.
I found this odd but the pain in my mouth from ulcers and gums and seemingly my tongue became unbearable by wednesday bedtime.
Thursday morning arrived and I could hardly wake up, let alone walk (my girlfriend said I looked drunk ha ha). I forced a scandi shake down feeling very weak from lack of food and phoned my doctors who said dont come to us go to the dentist first get it checked.
Well one emergency dentist appointment and £17.50 later the dentist simply said. Its just bad ulcers which have inflammed your gums but You need to see a specialist about the ulcers as I can see the pain your in and im phoning your doctor to get you booked in asap as I would like them to check.
I was surprised but went along.
Well sitting in the doctors they then seemed more concerned and said you need to see the specialist asap and im prescribing you anti-biotics and pain killers and pain killing mouthwash as I can see the pain is bad and we need you to keep eatting. Im going to prescribe you flucloxacillin, To which I replied im already on them as a constant to help keep my cough away. This then shocked the doctor who replied oh my how on earth have you got this much pain in your mouth and this infection when these drugs should be killing them off. Im getting you to the specialist asap this seems bad
Oh great I thought just my luck I never do anything by halves.
Anyway not worried I left with my new tablets and mouth wash and thought yes in a day or two i be able to eat.
WRONG.
The mouth wash felt like it was burning and I got more ulcers and more sick and sort of lifeless.
None the less I went to work thrusday. Never got any sleep that night and worked friday thinking yes couple days rest and these tablets should kill it. Ever the optimist me.
Saturday arrived with next to no sleep and the pain I was in oh the pain I have never felt anything like it. Nearly crying my girlfriend thought it best we go to the pharmacy and stock up on the best tablets we can find over the counter.
£10 for numbing mouth wash cricky thats all im saying.
Well I have to say the boots pharmicists in canterbury could not do enough they were brilliant. Stocked up with numbing mouthwash, pain killers and a first for me Codeine I was told by the pharmacist that maybe I should also go to A & E and get checked again as he was unsure on what was going on.
SO A & E we went with me nearly crying. Got checked in by an old friend who jokingly asked is that the only place youve got these things. Not in the mood I didnt hear it and blanked the question.
The doctor saw me and of course said ah yes I can see whats happened you need these tablets but im not sure its going to work, you need to see a dentist.
I thought blooming great so now I can tell no one knows whats going on two doctors and one dentist have been useless.
By this point the pain had become unbearable and I was starting to get a short fuse and was looking to kill something be it a insect person or an object something should feel the pain im in.
I must note by this point I had not eatten solid food for nearly 4 days. A CF sufferer and their dieticians nightmare.
May I mention I had fevers of nearly 40 aswell
Well Can I say Codeine is amazing it knocked me out and numbed me and I slept like a dream saturday night.
Sunday though once it had worn off I was wide awake looking to kill again.
i thought right thats it get me back to the dentist like the doctor said.
I have to say this dentist I saw in A & E is better than the doctors id seen as she did a doctors job.
Shocked at the state of me and my well being and the fact my entire mouth and lips were now covered in sores and ulcers (18 ulcers in total) she said to me did the doctor not do anything or the other dentist you saw.
My simple answer
NOPE
To which she sent me out the room and said I will come back to you in a minute. When I went back in she said
"IF I was you id complain about the two doctors and the dentist you saw previously. The reason why you have so many sores and ulcers and bad gums is because your run down and exhausted because you have a viral infection in your body and its knocking you down and showing its ugly self by causing these sores etc."
I said oh so its a gum infection. No the dentist said, the doctor should have seen you have a complete viral infection im sure of it and as a consequence of being tired youve now got gum desease. Go back to your doctor with this note and get this prescribed.
Feeling very happy but shocked that a Dentist had done what the doctor should of I went home knocked myself out with codeine and ibprofen and thought right if this doctor done get me sorted tomorrow Im going to have to go to the cf unit and get help
Well Monday I still had not eatten I was sick weak tired unstable but made it to my doctors who confirmed yes the dentist is right you have a viral infection and not just a few sores. And the dentist is right you need anti viral drugs. Take these and get more pain killers and go home and dont move or go to work this week.
Feeling relieved I started my new tablets before Id even walked out the door.
Got home and I passed out for most of monday tuesday and wednesday. Ive never slept so much in my life.
Thursday was the first sign that I had improved and was feeling less unstable and weak. And I managed to eat solid proper food (be warned I scoffed loads and was sick and had stomach cramps due to not eatting for nearly 9 days).
Friday arrived and I ate again (Sensible this time) but the sick feeling (and I did throw up once or twice) wasnt going away and I did still have that lightheaded feeling.
I have now rested as best as I could over the weekend whilst enjoying seeing my daughter and getting tickled every two seconds haha.
Monday has now arrived and im still sick but eatting okay and able to stay awake and the wobbly lightheaded feeling is getting better but still there.
I have never had a viral infection and neither do I wish to have another one. The pain and exhaustion let alone the sickness and lightheadedness has really taken it out of me mentally and especially physically.
Im gutted but still not over it. Tonight im hoping to get another weeks drugs to clear whatever remains and start to try and live normally again and eatting to that lost weight back.
In short the last 12 days have been horrendous and my body now needs to repai AGAIN and start over with trying to get fit AGAIN.
I havent told my CF team about any of this yet but I will and im bound to get told off ha ha
Take it from me if you ever feel exhausted get rest dont push your luck or your body will attack you to let you know its not happy.
Well thats it WHAT A NIGHTMARE its been
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