Just BLUERGH

Well today and the last few days Ive just felt very Bleurgh you know what I mean not with it a bit daydreamy and worst of all constantly tired.

yet when I go to bed even if its very early evening I just dont feel im getting the benefit of it.

I Know im not the only one to live like this but when it happens its not the best feeling in the world.

This is very frustrating when you try to explain it to people as no doubt some people think "oh shut up you idiot" and I can well understand that some people may see it that way. Not everyone is going to understand and agree its just a known fact.

 I read a great saying today that a CF Friend of mine tweeted or re-tweeted from a fellow suffer.

It simply said take a straw place in mouth hold nose and try to breathe and your starting to get the idea of how bad Cystic fibrosis can be. I never really thought of it that way as being a sufferer this may sound ignorant but you dont know any difference and you just get on with what life gives you but still its a great way to see how we manage with such little breath.

I once was told that a CF patient who used to live local to me survived for many years with only half a decent functioning lung. Dont quote me but if thats true thats quite remarkable.

Anyway just thought id see if anyone else had a way of describing how it feels to suffer with CF

Till my next post in about 20 minutes