Well,
With fitness top of my priority Ive decided to no matter what, to hit it hard and give my body a wake up and poke cf and say politely excuse me while i beat you with a stick
It all starts tomorrow
Im having some custom made running shoes fitted to make sure im as comfortable as possible. This is important why?
A) If I feel comfy in my running shoes (Like I did in my previous nike running shoes) It always make me feel like I can go that bit further as although my lungs are getting a beating my feet want to carry on.
B) When I was younger I had serious problems with my left leg and had two operations to correct it. My left leg is about 10-15mm shorter than my right let. I walk flat footed due to the operations and my hip knee and ankle are all mis-aligned and i tend to walk and run funny which puts extra pressure on my body. Infact im still having problems now more than ever due to my mis-aligned joints and currently have a trapped nerve in my leg so tomorrow will be interesting trying to get fitted but shows how important it is that I get the right fitting.
So having these fitted will make me want to do more because I will be comfy and i do not like to waste money.
I have also decided that in 2013 I want to join a load of nutters and compete in tough Mudder 2013. I am doing this because I want to do something amazing and prove Im still able to be fit and plus the people im doing it with are some of the best friends I could ask for and I know they wont let me fail and I will crawl around or be dragged around by them. Failure will not be an option especially with these people and I do not want to let my friends down who have been kind enough to say yes come join us we promise not to kill you in the process.
Tough mudder means fitness fitness and the need to man up and muscle up (excuse the poor choice of words).
Hence why im getting the shoes fitted and determined to get fit. I will not let CF beat me. Yes its got the better of me lately but not forever and im hoping to start turning that around asap before the winter gets here.
I decidely cracked out the weights I have at home last night and started working on my chest and arms (small steps but its all towards being healthier and stronger). My arms feel like they may depart my body at some point today
The other part of getting better is my plans to acquire a vest but not just any vest
This vest has done wonders for people with cf and I intend to join others in acquiring one and getting my chest clear.
I finally made contact with the company that produces and sells them. £6,995.00 to purchase. I must be determined to get better thinking of spending that on fabric, velcro, tubes and a pump which is essentially all it is but like I said previously you cant put a price on this sort of thing even if it is expensive.
Im discussing it with the physio when I see her in a couple weeks to see what they say and get measured up for fitting etc. Then putting a financial plan in place to get things moving quickly.
Can I just also take a quick moment to thank many family members and friends for their offer to help me with this and especially to a certain family member who I cannot thank enough in words for the most amazing offer of helping. I cant thank you and everyone enough for your kind words.
And finally
Ive also just applied to take part in a drug trial for gene therapy. Ive not been accepted yet but have been very keen in my approach and am hopeful of a place. If I get a place I will let you know but its a time consuming process and will take a year to trial the drug. IF not im looking at other trials.
Im desperate to get some new drugs and also most importantly do my bit for CF and try and help in trials and developing future drugs.
All is for the future and to keep myself going and build a more fitter longer term future for me and my body.
I heard an amazing line last night.
In life we will always get knocked down, but no matter, because it is us who choose how we get back up.
Consider these plans my choice, my way of getting back up.
It best work
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