Thursday, 27 September 2012

A Little rant, Why simple things are never simple with CF

Ive had a cold for a few days now and its been a nightmare

I know to most people a cold isnt anything major and comes and goes regularly without any major complications but getting a cold with CF can be a nightmare

Dont get me wrong its not always a nightmare and getting a cold can be pretty simple.

Unfortunately with my run of luck of course getting a cold this week has been a nightmare.

I am no where near good health at the moment but despite set backs and having viral infections over the last few weeks ive been managing okay.

Getting this cold though just doesnt help.

And before any woman says "oh typical man moaning hes got man flu" Im not moaning its just painful annoying and sleeping deprieving

Getting a cold this week hasnt been a total disaster but doesnt help when im trying to get fitter and healthier and keep my health at least at the level it was when I left hospital in August.

It started simple but always ends up complicated.

On Monday someone at work who I was working closely with had a nasty cough and sniffles and obviously I ended up with it. Tuesday I seemed okay if a little bunged up but nothing unusual

Its when I got home tuesday night it really kicked in, my whole face felt full up and my eyes and nose were hurting from my sinuses going mental and I even took my contact lenses out to give my eyes a rest. Again nothing unusual with a cold but where it gets bad is when the cold gets on my chest that then starts my cough off I couldnt lay down to sleep as the cold got to my chest easier and i ended up hardly sleeping, struggling for breath and trying to cough up as much as possible so that it didnt get a chance to hang around on my chest for too long causing more pain

Wednesday morning was a complete no no as I was in so much pain from coughing and head aches I decided not to move and my boss is always good when I phone and Say I need yet another day at home as im unwell I still do as much as I can at home though for work as I always feel like im letting them down

So why is the cold a nightmare with cf?

Well put it this way its started my chest off and thats now given me a nasty cough which has given me head aches and causes me to throw up and inevitably I have started to cough up blood as I been putting so my pressure on my chest/lungs.

I spent most of yesterday doing hypertonic saline, then throwing up because of the hypertonic. Then doing breathing exercises to try and keep my chest clear, then doing pulmozyme/dnase nebuliser to help protect my chest and again try and clear my chest with more physio, constantly drinking fluids as I was dehydrated and keeping wrapped up to help my chest and finally bathing in vix to try and help my sinuses and clear my head. Dont get me wrong its not always like this but as this year hasnt been good for my health so it was always going to happen.

I didnt sleep at all last night as I had a fever and the vix was doing its best to help that along with blowing my nose every two minutes to stop my cough keeping me awake.

Clock watching at 2:45am is not fun knowing the alarm will sound at 6am and again at 6:30am

Well all the hard work yesterday seems to have paid off despite not getting any sleep as the cold doesnt seem too bad today And I managed to go to work okay which is always a plus. I hate missing work.

Anyway rant over

But I hope it shows simple things are never simple for me anyway. But we all try our best so that the simple things like colds and sniffles dont turn into chest infections or worse the Flu.

I just cant imagine how bad it would be if I got the flu. Colds are hard enough to fend off as it is.

Oh and im back on the antibiotics I have to make sure its clear and prevent anything growing from the cold getting to my chest.

I stink of vix but at least the cold is going.






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