Future Health Plans and the NHS care or lack of more like

Now before the title sounds like im being negative about the NHS and the care I receive I am going to clarify what Im going to write about

Im not writing negative about the CF team that care for me not one bit as they do a very good job for me and try their best to help my health with the resources they have and the time available.

What im writing about is the NHS and the lack of funding that they supply to CF units across the country not just to adult units but also child care of cf aswell.

To give you an example The Royal Brompton is to stop performing Heart and lung surgery on children despite being one of the best and most successful units in the country.
This is a massive blow for Cf sufferers and other patients with heart and lung problems.
Why is this happening?? Simple the NHS cant afford to run them anymore. They are not the only unit closing its also happening in leicester and leeds.

The NHS reasons for these closures? They say its because doctors/specialist are spread too thin across the country and want to concentrate them in fewer hospitals.

Rubbish

If they were spread so thin how have these units all over the country been able to successfully complete so many opertations? And have been so innovative in pushing future works and surgery procedures??

The NHS has a lot to answer for. People who may have been waiting for surgery or transplant may now have to travel further for surgery which means more risk to the patient.

The NHS need to man up and explain why other than the BS reason they gave about being spread too thin because its not believable they must think we are all too ignoratn or stupid too notice these rubbish excuses.

Just tell us the truth, your either underfunding because your concentrating on other areas or the Government has told you to cut funding in specific areas.

I currently receive treatment from The Adult CF unit in Kings college and have done for the last 3-4 years. Before that I received my treatment in kings college in a ward where the cf team were basically leant rooms from other wings/units to provide us with care.

It took them years to get a wing of their own and that was unacceptable in many peoples eyes and alot of people tried to help. Its like the NHS ignore CF patients and the cf team had to make their own arrangements and beg other units to spare some bed space to care for us. Again let me say that the cf team are not to blame at all they can only use what they are given and they are severly underfunded and seemingly forgotten by the PCT (Primary care trust) and they have to nudge them to remind them of their and their patients presence.

Its no wonder that CF patients only have a average age expectancy of 31 - 35 in the UK when the NHS seems unwillingly to help or provide anything. In america the CF trust receives huge sums of money through donations and many other avenues and support and patient care seems to be of a high standard as over there through care and medicine advancements their average ages expectancy is 5 years better than in the UK. Why are we 5 years worse off here??

The truth is no one is willing to tell us that truth because it would show too many holes and blame too many government run areas and no one would admit to that short fall and responsibility

The CF Trust in this country do an amazing job to help with medicines and research and if it was not for them and was left to the NHS (Like so many other charities have to deal with) we would all still be expected to die during our child years.

Can I also point out that it is not Only cf that is affected in this way but many different illnesses and charities but im concentrating on CF for obvious reasons.

If it wasnt for charities and fund raising events and the generous british public where would CF be??

Where would any charities be without kind giving people and the donations they receive??

Its not on but due to ignorance from the government and NHS bosses things seemingly will never change