My daily drugs intake

Hello to all that are reading this post


I thought id show you all what I take tablet wise on a daily basis

Below is a list of tablets and insulins I take

Ive also attached a photo of when I laid one days intake of tablets on my kitchen table at home.

Im interested to hear what any fellow sufferers have to take on a daily basis??


My list is as follows: -

Per day I take 


Ursodeoxycholic acid 300mg 2 tablets
Lansoprazole 15mg 2 tablets
Creon 25000 50-70 tablets a day
Vitamin E 400 2 tablets
Azithromycin 1 tablet every 3 days
Vitamins A & D 2 tablets
ADCAL D3 2 tablets dissolved in water
Dornase (pulmozyme) 1 - 2 per day 2.5mg through Eflow
Hypertonic Saline 1 - 2 per day through e flow
Flucloxacillin 2 tablets twice a day
Scandishake Drinks 2 a day
Novorapid Insulin injections upto 3 times a day approx total units of 90
Levermir long term insulin 34 units per day 1 injection

How Cystic Fibrosis Affects me

As you may or may not know CF affects everyone differently.

Me personally it affects me sort of 50/50 in terms of well actually I cant really say if it affects me mildly or badly but it affects my stomach and lungs the most and sort of equally.

My stomach and liver etc are quite easy to manage and control with my tablets and for many years I have kept my lungs under control and my health in general has been good and well managed.

This time last year my capacity overall was around the 4 mark and my FEV1 was 3.1 for those of you who are reading this and know CF well will know exactly what im talking about.

In the past eight months my health has sort of gone downhill quite quickly and its becoming more of a challenge to solve the problem find suitable drugs and hopefully improve things, now dont get me wrong im not just relying on the doctor and hospital staff and the drugs to get me better.

Now my current overall capacity is 3.4 litres and my FEV1 is 2.4 and thats after a recent hospital stay and IV treatment which lasted nearly 4 weeks. I know though from past experience and talking to my doctor you dont repair 6-8 months worth of being sick and constant chest infections with just a few weeks IV's, it takes time and work to improve fitness clear lungs and hope the drugs aid the process, Thats exactly what im trying to do.

Im also going to the gym and swimming trying to improve my fitness and capacity by pushing myself and by exercising which helps to clear my lungs or at least loosen things up and push things up a bit then I do whats called AD or autogenic drainage which by doing respiratory exercises help to push mucus up out of my lungs helping me to cough it out and clear the ever growing mucus. I do this twice a day at present every day.

Anyway thats a short post on how it affects me I know its now very detailed but will let you know more as I put up posts

Thanks for reading

My first memory of Cystic fibrosis

My first memory of cystic fibrosis is Buckland hospital in Dover being in a glass walled room and being told I was not allowed to leave that room as I was poorly.

My most vivid memory of buckland hospital is the cereal that I had every day.

Lucky Charms

"How strange a thing to remember" I hear you saying but its my strongest thing I remember of my first experiences

Little did I know that then I regularly suffered from Pseudomonas at that early age and visited Buckland quite alot.

My name Is Jamie Fox im 26 years old I currently live in a village called St Magarets at Cliffe near dover and im starting this blog as a means to starting to share my experiences with sufferers and non sufferers and to help plan putting my book and own charity.

Over the coming days weeks and months im hoping to write about my experiences and facts about cf and hear from other who suffer and share experiences between one another.

If you wish for me to read your blogs please let me know as im looking forward to sharing my own and readfing others blogs and cf experiences be it as sufferers, partners or family of sufferers or people who have just been introduced to cf

My tag line for this entire blog is

cf the unknown abbreviation

Thanks for reading and i hope you enjoy my future blogs :-)