As you may or may not know CF affects everyone differently.
Me personally it affects me sort of 50/50 in terms of well actually I cant really say if it affects me mildly or badly but it affects my stomach and lungs the most and sort of equally.
My stomach and liver etc are quite easy to manage and control with my tablets and for many years I have kept my lungs under control and my health in general has been good and well managed.
This time last year my capacity overall was around the 4 mark and my FEV1 was 3.1 for those of you who are reading this and know CF well will know exactly what im talking about.
In the past eight months my health has sort of gone downhill quite quickly and its becoming more of a challenge to solve the problem find suitable drugs and hopefully improve things, now dont get me wrong im not just relying on the doctor and hospital staff and the drugs to get me better.
Now my current overall capacity is 3.4 litres and my FEV1 is 2.4 and thats after a recent hospital stay and IV treatment which lasted nearly 4 weeks. I know though from past experience and talking to my doctor you dont repair 6-8 months worth of being sick and constant chest infections with just a few weeks IV's, it takes time and work to improve fitness clear lungs and hope the drugs aid the process, Thats exactly what im trying to do.
Im also going to the gym and swimming trying to improve my fitness and capacity by pushing myself and by exercising which helps to clear my lungs or at least loosen things up and push things up a bit then I do whats called AD or autogenic drainage which by doing respiratory exercises help to push mucus up out of my lungs helping me to cough it out and clear the ever growing mucus. I do this twice a day at present every day.
Anyway thats a short post on how it affects me I know its now very detailed but will let you know more as I put up posts
Thanks for reading
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