Hospital, progress and a sense of regained feeling of something I thought was long lost

Well it's day four of being in hospital and I must say I'm buzzing with how I feel today.

When I came in Monday I was nervous and thought oh god here we go same old shit I don't think this is going to work

But

After talking to the doctors getting my line and starting the drugs, physio and gym I feel ok and that yeah the plan may just be working. I feel the doctors are bang on and they are really listening and working hard with me to get things right.

It started nicely you know meet new doctors discuss the usual and a plan ahead

In simple terms my plan is

Get line in
Start drugs
Physio
Gym
Rest but never rest long enough to keep working hard

I'm on timentin and tobramyzin

I started off easily but the drugs are four times a day around the clock

Heres my day roughly but times can change but not what has to happen each day

6:30am

Check diabetes level
Do timentin

7:15am

finish timentin
Take one a day tablets approx 10 tablets
Carry out observations
Get more sleep

8:30am

Breathing exercises
Nebuliser
Get breakfast

10am

Gym
Do nebuliser
Breathing exercises
Check diabetes


12 midday

Ivs timentin followed by tobramyzin
Lunch
Check diabetes

2pm

Finish drugs

3pm

Physio/breathing exercises
Doctors visit

5pm

Check diabetes
Dinner

6pm

Do timentin

6:45pm

Finish drugs
Check diabetes

7-11pm.

Rest up if I can

11-12pm

Check diabetes
Do timentin

12:30pm

Finish drugs

3am

Check diabetes

And that is basically a day for a cfer on a cystic fibrosis hospital ward

Busy and exhausting but if all goes well it wells very much perfect and the hard work has paid off

I will have to do this for approx two weeks depending on how my health is and how I improve

If all goes well I may only have to do a week at hospital then be allowed to go home and do treatment from home for a further week but the routine must remain the same at home

No let up can be had

This admission is an important one though and most likely the most important of my life if I intend to live a longer future and to get my health back to where it should be.

After the last 12 months I noticed its been my worst as a cfer and its been hard but I haven't stopped I've tried and failed but never just stopped

Now I'm trying again in this hospital visit

And failure is not on my mind this time

Why?

Because this time I think the combination of drugs physio and hard work on my part aswell as the doctors and physios is nearly perfect provided it keeps working till the end of the planned two week treatment

Why do I think it's the right combination and working as best as it could?

Easy to explain

We are monitored in many different ways but importantly we are measured by our physical abilities or lack of it to start with and how we then progress over the two weeks
This can be seen in our gym work but more obviously by our lung function tests

On Monday when I arrived I was tired and my lung function was 2.1 fev1 and 3.3 overall capacity
Or in percentage terms about 60%

So with a theoretical plan in place me and the staff set to work

Gym started slow on Tuesday I could only 20 minutes total 10 on cross trainer 10 on bike both at low pace
And physio was producing bucket fills of phlegm

Well in short it's now Thursday

And today the phlegm production is starting to be easier to get off my chest and more importantly the quantity is becoming less

And the pseudo is no longer growing so far as the test results show

I've had my vitamin tests done and tomorrow will know the results a will also being doing lung function to see if I'm improving

Now I may be optimistic but I'm sure everything's improved

Firstly I've been shoving in vitamin supplements life my life depends on it (which in actual fact it sort of does)

Secondly I've put some damn hard work in

Physio I've been doing all the time just trying to move phlegm, get out every drop that I possibly can always trying to feel where it is a cough it up, I've relentlessly done nebulisers trying to aid more phlegm movement
I've just not stopped
But thirdly and most importantly

In the gym I've pushed like no one else is doing here like nothing else matters but to push and get the miles in

Today feels like my finest achievement

I did one solid hour of cardio work non stop and totally pushed

To the point I thought I couldn't even get off the bike not that I let my physio see that

I covered 12 miles in total something I've not managed in a year but in four days of real hurt for me and a new motivation I've pushed to get better

In total I did 30 minutes 3 miles on the cross trainer and 30 minutes 9 miles on the bike

I cannot describe to you all how good it has made me feel how relieved I was to see how hard work and not giving up can make me feel

And I want more

Tomorrow I will push more I want more distance more air in my lungs.

I feel great and even if my lungs have only improved a tiny bit in my tests tomorrow I feel I've pushed a barrier over I've leapt a wall and now I'm going to leap higher

My motivation is high my legs and lungs feel amazing and I'm going to push

Bring on the miles bring on the running shoes bring on the pain

And most importantly I feel I can now push for something I want to accomplish in 2013

BRING ON TOUGH MUDDER

I CAN DO THIS


My so called disability is only just making me want more I feel spurred on like I never have before

Who would have thought a disability could feel like a new ability

I've got another ten days of treatment and I'm going to push whatever I can

GET OUT MY WAY

Thanks for reading