I just seen my blog and noticed I havent blogged in ages so thought while ive got nothing going on id write a catch up blog.
Not much going on really other than im still struggling to fit 5 nebulisers in a day due to work and the time constraints. (I will not do my nebs at work). I have to do 2 pulmozymes a day 1 hypertonic saline a day and 2 colmycin a day. Seems easy until you realise they need to be spread over time and work lands right in the middle.
A general rule is you need at least 1 hour between nebs. In the evening its not too bad its the morning treatment. To be able to do this I need to get up early but if I do that I dont feel well as i dont get the sleep i need to feel ok. And if I go to bed earlier in the evening to help the morning treatment I cant fit in my nebs needed in the night. What a nightmare.
That said im still doing 4 out of my 5 nebs in the week and of course on days off im doing all of them so im not failing too much.
I have still been going to the gym to keep fit and ive managed to put weight on. Im just a smidge under 9 stone now and I havent been that weight for nearly a year which is great. Although it has taken me a year to put on half a stone despite eatting like a pig. I had two dinners last night to give you an idea of how much im trying to eat.
That said im happy with my weight gain. I just hope it can stay that way over the winter.
+My chest is and i say this very honestly OKAY but it could be so much better although it could be alot worse.
My last visit i was 2.5 FEV1 which is okay but my best in the last year was an average of 2.8 and highest was 3 so ive got so much more to improve.
The pseudo seems to still be on my chest but its slowly going.
I have good days and bad days. I thought last week I had a good clear chest then come the weekend until now I feel so clogged up. Im still giving it plenty to shift it though but im starting to get very impatient.
Im sure if I did some iv drugs in hospital for two weeks it would just shift it very quickly but its only if the doctors and me can see eye to eye and get the right treatment plan in place.
But the ward is soo busy at the moment as everyone seems to be ill (its always the winter that causes the ward a nightmare) there is no room for me at the moment so im just sticking to nebs, tablets and exercise. And that does seem to be doing the best job that it can.
I could say im feeling very low right now because im trying trying but I hate slow progress. Im fighting hard with myself to self motivate but its hard when I cant see the results as best as i should.
Im still puking on a regular basis when doing salt which is starting to get annoying but i just have to keep thinking its good its clearing things, although ive found a way to sometimes stop it happening but it doesnt always work. Just got to keep going.
Im still utterly exhausted and am struggling with exhaustion so much. I thought i was starting to get over it but feel actually ive slipped into worse exhaustion.
I just want to get better but patience is wearing thin.
I will be better one day im sure I just cant see when.
Oh well enough of me moaning.
Ive got the hospital tomorrow to see how im doing. I might surprise myself and the results might be better than im feeling. Im hoping if its good it will give me some motiviation to keep pushing.
If I can see the results coming I'll keep wanting more. I just hope its not got worse as i dont know how id feel for that right now.
This has to go well this week.
If not ive got my little girl over the weekend which always makes me feel great and Love her to pieces and if my health isnt good at the hospital appointment im sure she will make me keep fit by running around all weekend so thats always amazing to know I can keep up with a energy full 5 year old he he :-). Its looking like swimming and kids planet which keeps any parent fit plus we need to start our christmas shopping. Maybe I should cancel hospital tomorrow and rebook monday after my fitness weekend ha ha. Life isnt always bad :-)
Thanks for reading
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